
When I got home from work tonight, my three-year-old, Angelina, met me and informed me that she was sick. Since Joseph is the one who has been sick for the past few days, and since I had not heard anything about Angelina coming down with something, I suspected that she was really okay. I asked Angelina how she knew that she was sick and she said, "My throat is in my neck."
After repeatedly asking Angelina what she meant, I gave up trying to figure it out. I don't know--maybe it's gang code. In any event, she seemed shocked, and actually laughed, when I told her that my throat is in my neck as well.
After the illness that has beset our family for the last few weeks, it was easy to understand why Angelina thought she was sick. In the first week of July, Allyse and Benjamin came down with a prolonged fever. For Allyse, it lasted about five days, and it caused her to have nausea the majority of the time. Benjamin was pretty darn ornery (for him) for about a week. During the next week, it hit Joshua, but to a much lesser extent than Allyse.
We hoped that we had escaped with Joseph, but finally, the fever hit Joseph last Thursday. He experience a brief reprieve on Friday (long enough to go to school and compete in the Art Quest), but then it returned with a vengeance on Friday afternoon, and it hit me on Saturday.
The brakes on my car were in bad shape, so I completely changed out all four rotors and all of the pads on Saturday. However, by the time I was finishing, I was starting to feel pretty bad, and I came down with a fever and body aches. I also had a splitting headache that did not leave until Monday morning.
No matter how sick I felt, it didn't compare to Joseph. Due to Joseph's diabetes, the last 48 hours have been an absolute roller coaster ride. Once again, ketoacidosis is the issue. Julene and I have been doing everything we can to keep from having to return Joseph to the Pediatric Intensive Care Unit at UMC. It is one thing when Joseph's insulin pump is not properly delivering insulin (for whatever malfunction). It is a totally different animal when he experiences nausea due to viral infection.
Here's the problem. With nausea, Joseph cannot keep food and drink down. Without food and drink Joseph's blood sugar will not be high enough to give him insulin. Without insulin, Joseph's ketones rise, and he becomes at risk for ketoacidosis. In addition, if his blood sugar gets too high, he gets ketones. When he has ketones, then he gets even more nauseated. However, once he gets ketones, if we give him too much insulin to reduce the ketones, then we risk sending him into hypoglycemia. In a mild case, hypoglycemia also increases nausea, which then makes it nearly impossible to get food into Joseph to make his blood sugar rise again. In more severe case, hypoglycemia causes coma and death.
It feels as if we are performing a balancing act on a razor's edge. If we teeter even a small distance, then it rapidly sends everything completely out of whack, with potentially disastrous consequences. Then we spend the next several hours trying to regain some sort of equilibrium before he flies off in another direction. Last night I was up until 1:30 a.m. testing Joseph's blood and testing his ketones, giving him insulin, giving him carbohydrates, and praying that it would all come together. Then, Julene was up in the wee hours of the morning and I was back up at 5:15 a.m. for more of the same.
There were numerous times yesterday and today when we were minutes from taking him to the PICU. Julene called Joseph's doctor, explained the situation, and tried to get some more direction. They seemed surprised that we have been able to hold it together this long. However, today Joseph was so tired of being nauseated that he was asking to go to the hospital.
I still am fighting the fever, and the headaches and body aches are intermittent. Mostly, I am exhausted, and I know that Julene is tired too, having to take the brunt of it Monday, in addition to caring for the baby and the rest of the children. We are just praying that Joseph's fever will break on Tuesday, and that he will feel a settling of his digestive system at that time so that things can return to their normal state of chaos.